Personal Stories
A growing collection of individual neuroblastoma experiences and perspectives as told by the families, friends and carers most closely affected.
Lowen’s Story
Lowen was diagnosed with high risk, stage 4 neuroblastoma at just four years old in 2022. After 18-months of treatment Lowen is in remission and despite some side effects is a happy and healthy eight-year-old. Fliss, Lowen’s mum shares his story…
Tommy’s Story
Tommy was diagnosed with Stage 4 High-Risk Neuroblastoma in April 2024 at just two years old. After 18-months of intensive treatment Tommy is now thankfully in remission, but side effects from treatment have left a lasting impression. Tommy’s mum Nicole shares his story…
Katie’s Story
Katie was diagnosed with neuroblastoma in 1995 just before her third birthday and is thankfully now a happy and healthy 33- year-old. Thirty years on, Katie’s dad Richard reflects on their experience…
Jake’s Story
Jake was diagnosed with Stage 4 neuroblastoma in January 2004 at twelve years old. After 6-months of treatment Jake sadly died in August 2004. Jake’s Mum Lorraine shares his story.
Maria’s Story
Maria was diagnosed with Stage 4 Neuroblastoma in March 2019 at 13-years-old and after three years of treatment sadly died in 2022. Her mum, Leyla, shares her story…
Harper's story
Harper was diagnosed with Stage 4 High Risk Neuroblastoma at just one-year-old in 2023. Despite a relapse scare and some side effects from her treatment, two years on from her diagnosis Harper has no evidence of disease (NED) and is about to start nursery. Harper's mum Jenny shares her story…
Alex's story
Hayley has kindly shared a heart-warming story about her son, Alex, who was diagnosed with neuroblastoma at the age of two. Alex’s story demonstrates just how important treatments and research can be for the lives of children with neuroblastoma and their families.
Demie’s Story
Demie was diagnosed with neuroblastoma when she was just 6 years old, 20 years on she is a Paediatric Intensive Care Nurse in London and has been in remission for over 18 years. Demie shares her story for International Cancer Survivors Day…
Rebecca & Heidi’s Story
For International Sibling Day we spoke with Rebecca, who lost her sister Heidi to Neuroblastoma in 2000. 25 years later, Rebecca reflects on her experience of watching her sister battle neuroblastoma and how it has motivated her to start fundraising. Rebecca share’s their story here…